18 04, 2018

Professional Caregivers & Grief


How Professional Caregivers Grieve the Death of a Resident

Last week when I spoke at the Pennsylvania Assisted Living Association spring conference, I talked about the grief professional caregivers experience when a resident dies.

I shared several stories, including one about my Grandpa Stan who suffered a stroke late in life. The stroke robbed Grandpa of his independence and the ability to do almost everything that brought him pleasure. To say he was cantankerous the last few years of his life would be a phenomenal understatement.

And yet, there was a laundry lady in the nursing facility who demonstrated to us, through a simple act of kindness, that Grandpa deserved to be shown respect––even in death.

I regret that […]

27 07, 2015

Remembering a Loved One

Finally! Happy Memories of My Dad

remembering-dadMy dad suffered a debilitating stroke on October 30, 1993. He was diagnosed with prostate cancer the following day. He died on July 27, 1999.

During the six-and-half years my mother cared for him, she often described the impact the stroke had on his body and brain by saying, “My husband died on October 30, 1993. We just haven’t gotten around to burying him yet.”

My dad had been a happy, optimistic, hard-working Kansas farmer. As his health declined, it became increasingly difficult to remember who he’d been before the stroke.

This morning, on the anniversary of his death, I woke up with a vision of Dad on the tee box of a Kansas- cow-pasture-turned-golf-course. (It’s where he […]

28 03, 2015

Writing About Caregiver Grief

How Writing About Caregiver Grief Can Help Ease the Pain

Writing about caregiver griefCaregiver grief is complicated. When a loved one gets diagnosed with a terminal illness, we enter Preparatory grief, which is the process of adapting and adjusting to ongoing losses and changes. As we go through Preparatory grief, we mourn the loss of what we once had. We grieve the loss of the life that we hoped to be living at this point in our lives, and we grieve the losses that we know are still ahead. When the end finally does come after a long, progressive decline, our grief changes.

I was reminded of this when I visited with my friend Dorothy who helped care for a favorite aunt […]

26 01, 2015

Respecting Caregiver Grief

Grieving the Gradual Loss of a Parent

caregiver grief for elderly parentsIt’s not unusual for people to minimize caregiver grief when they hear someone talk about the sadness they feel as they witness the decline of an elderly parent.

My dear friend Kathy called to tell me that her mother had suffered a stroke. She said, “People keep telling me I’m lucky because my mother is 93 and I’ve had her so long. But I don’t feel lucky. I feel scared and sad, and I’m worried about her and my dad. She’s confused and frightened, and she can’t even write her name now. She keeps saying, ‘I don’t understand what’s happening.’ She gets mad when we try to explain things to her. I know […]

20 10, 2014

– MORTAL –
Caregiver Word of the Day

Caregiver Help Photo of a Pink RoseWe are grieving the loss of our son’s-in-law sister Sally. She died this morning after a long and valiant battle with cancer. She will be missed terribly by her family, friends and community.

Facing our own mortality is not easy, but Sally did it with incredible grace and dignity. When she knew there was no hope for a medical cure, she took control of the remainder of her life. She went into Hospice care knowing that they would help her manage her pain. Unable to digest food, she did agree to a feeding tube that provided nourishment long enough for her to get her affairs in order, spend a long weekend with her extended family […]

11 07, 2014

– WITNESS –
Caregiver Word of the Day

IMG_1131Last night as we were headed home from a trip to Costco, I glanced in the rearview mirror and saw a car hit a bicyclist. I witnessed the moment of impact and saw the boy’s body fly through the air and land on the sidewalk. I quickly flipped the car around as Alex frantically dialed 911.

The boy’s name is Raul, and he’s 17 years old. I held his hand and tried to reassure him while I relayed information to the 911 dispatcher.

A woman came up and said, “I’m a nurse.” She checked Raul’s pulse. A man came up and said, “I have emergency medical training.” He took off his jacket and put it under the boy’s head. In less […]

3 07, 2014

– Grief #4 –
Caregiver Word of the Day

IMG_0993The third step in developing an attitude of creative indifference toward grief is ACTION. Before you implement an action plan, you need to know that there is no cure for grief. It is a process. You don’t get over it, but with time and effort you can get through it.

Over the course of the next several days, I will be writing about a variety of action steps that could be helpful. Today I’d like to start with suggesting you eliminate the words “normal”, “expectation” and “judgment” from your vocabulary for a while.

Wherever you are today, and whatever you are feeling right now is okay. Don’t set expectations for yourself. Don’t judge yourself, and don’t let anyone tell you what […]

29 06, 2014

– GRIP –
Caregiver Word of the Day

IMG_0956Our grandson works as an instructor in a rock climbing gym in Vancouver, Canada. He has scaled the sheer faces of rock formations all over the world. Recently he and his girlfriend Sarah took a trip to Yosemite National Park. Since they are both experts, they chose to start on a difficult climb.

It didn’t take long before they realized the rock in Yosemite was different from the surfaces with which they are familiar. Their equipment wasn’t perfectly suited to the environment, and fairly quickly they realized that their typical approach to climbing wasn’t going to work in this environment, so they quit.

I’m so proud of both of them for not letting their ego get in the way. They didn’t try to convince […]

25 06, 2014

– TERMS –
Caregiver Word of the Day

IMG_0968 2

In 1995 when Alex and I started talking about getting married, we were both aware that our age difference would eventually affect our quality of life. Wanting me to consider the future carefully, he warned, “We might only have ten good years.”

We were both aware from the very beginning that the clock was ticking, so we agreed that we would never look back and say, “We wish we would have done (fill in the blank) while we could.”

We will celebrate our 18th anniversary in September. We have both done meaningful work. We have traveled all over the world, and we have had marvelous adventures. We kept our promise to live our lives fully, and reflecting back, I have to say we […]

24 06, 2014

– COLLAPSE –
Caregiver Word of the Day

My young friend who owns his own business, has three little girls and is the primary caregiver for his grandmother collapsed last week. He had been pushing himself way to hard for way to long, and then he had several clients who all needed big projects completed at the same time, so he pulled a number of all-nighters. One day I asked him if he had slept the night before, and he said, “Sleep? Who needs it?”

Apparently, he does. A visit to Urgent Care turned into a trip to the Emergency Room and a diagnosis of pneumonia and severe dehydration. The doctor gave him a prescription and strict orders to go home, rest, take his medication and drink lots and lots of fluids. He was told if he tried […]

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