21 07, 2016

Finding Humor in Caregiving

Caregiver Humor What’s funny about caring for someone who is aged, chronically ill, or living with dementia? Absolutely nothing!

But anyone who has ever done it for an extended period of time will tell you that it is entirely too difficult to take seriously all of the time.

I recently wrote an article for ZestNow.com, an online publication “For Women 50 and Forward’ about using humor as a tool to cope with the stress associated with caring for a loved one who is living with a long-term progressive and degenerative disease.

If you have ever considered doing something desperate to get a little rest, please click on the link to my article, and be sure to watch the short animated clip, “Claudia Robs a […]

25 12, 2014

MIRACLE – Gift of Caregiving

Love – The Miracle Gift of Caregiving

Christmas message for caregiversChristmas is the season of miracles. Today children have awakened to find gifts from Santa. Volunteers have helped grant wishes by ringing bells and collecting food, clothing and toys. The generosity of those in a position to give has provided countless Christmas miracles for people in need. However, when money can’t fix a problem, miracles are more difficult to create. When we’re caring for someone who has run out of medical miracles, we have to look beyond the needs of the body. A friend whose husband had fought a long and arduous battle with cancer, wrote to me and said, “We prayed for him to get well. That didn’t happen, but he […]

10 10, 2014

– RESPONSIBLE –
Caregiver Word of the Day

IMG_1493Many, many years ago I was in a very unhappy marriage. I made an appointment with a psychologist because I was guilt-ridden over the fact that I wanted a divorce. I talked rapid-fire for 45 minutes explaining the situation, and when I took a breath, the psychologist said, “You need to get in your own shoes and stay in them.”

I asked her to explain. She said, “You are so tangled up in everyone else’s feelings that you have no idea of where your own feelings begin or end.” She went on to explain that I could not control other people’s behavior, feelings or reactions. I was only responsible for my own.

As a caregiver, you will most likely take on […]

8 10, 2014

CENTER – Finding Your Center

What is the Center of Your Being

Red FlowersFinding your center can be the key to self-care for caregivers. For the next several days I am going to be writing about caregiver self-care. My goal through this series is to help you accept the idea that self-care is not selfish. If you can avoid becoming immersed in your care receiver’s needs, it’s less likely that you’ll lose track of who you are and what you need to do to maintain your own physical, mental, and emotional health.

Lao Tzu, the Chinese philosopher said, “At the center of your being you have the answer; you know who you are and you know what you want.”

I think at the center of our being, we […]

7 10, 2014

– TOUCH –
Caregiver Word of the Day

IMG_1097When I spoke at a conference in Georgia a few years ago, one of the attendees told me that she had almost given up on communicating with her father who was in the final stage of Alzheimer’s.

She went to see him every day, and she’d done everything she could think of to connect with him. She had talked, she’d read books and played his favorite music. Nothing she did created even a flicker of interest or recognition. Feeling defeated one day, she sat down next to his bed.

As she grieved the fact that her father was lost to her, she took his hand in hers and started stroking it gently. As she thought about the man he’d been before […]

6 10, 2014

– CAPABLE –
Caregiver Word of the Day

My friend Charles Schoenfeld, who spent most of his career working as a UPS delivery truck driver, was in his mid-fifties when he started volunteering at the memory care community where his mother lived. When he realized he loved working with people who have Alzheimer’s, he retired from UPS and became a CNA.

A few years ago he wrote the book, “A Funny Thing Happened on My Way to the Dementia Ward”. This is one of my favorite paragraphs:

“I often heard apologies from the families of those living with Alzheimer’s. People tried desperately to excuse the behavior of a loved one whose mind had been set adrift. I hope this book reaches you. I hope to convey a message There are people who understand. Your loved one, regardless of his […]

5 10, 2014

– APPROACH –
Caregiver Word of the Day

IMG_1124As Alzheimer’s Disease progresses, people lose their peripheral vision. The impact of being able to see only what is directly in front of them shrinks their world and makes the activities that are happening around them even more confusing and frightening.

If you want to see what this is like, try cupping your hands around your eyes like a set of binoculars. Now imagine how startling it would be if someone you hadn’t heard or seen suddenly put a hand on your shoulder.

There isn’t anything you can do to stop the progression of the disease, but you can reduce the stress for your care receiver by always approaching them from the front. Make sure they see you coming. When you […]

3 10, 2014

– MOOD –
Caregiver Word of the Day

IMG_0339When you enter a room, you bring your energy with you. People with dementia are sensitive to other people’s moods. If you are feeling happy, positive and cheerful, they will respond to that. If you feeling rushed, cranky or resentful, they will also react to that.

One of the easiest ways to change a mood is with music. Music memories are stored in a different part of the brain than language. People who haven’t spoken in a long time will often sing along when they hear a familiar song.

Go online and figure out what songs were popular when your care receiver was in his/her teens, twenties and thirties. If they sang in a church choir, search for timeless and familiar […]

2 10, 2014

– LANGUAGE –
Caregiver Word of the Day

IMG_1143It helps to remember that Alzheimer’s impacts a person’s ability to process language. In order to reduce frustration for them (and for you), avoid giving complicated directions. Speak slowly and use sentences that have seven or fewer words.

Communicating in this manner takes more time. It takes a lot of patience. But if you can use simple language and pause in between short statements, it will help them understand the message you’re trying to convey. It will lessen their anxiety, and you’ll probably have more success in getting them to cooperate.

Just imagine how you’d feel if someone you didn’t know barged into your house and started talking rapidly in a language you didn’t understand. I don’t know about you, but […]

1 10, 2014

– DON’T –
Caregiver Word of the Day

IMG_1136Over the course of the next several days I’m going to be sharing some strategies that can help improve communication and cooperation while caring for someone who has Alzheimer’s or other dementia-related diseases.

Today I’m starting with the Three DON’TS of Dementia:

1. Don’t argue. You will not win. Arguing will just make them more agitated and upset.

2. Don’t try to talk them out of it. Rationalizing and reasoning will not work. Whatever they are experiencing in the current moment is as real to them as your reality is to you. Trying to convince them otherwise is futile, and it will leave both of you upset and frustrated.

3. Don’t pressure them to remember. They can’t. Alzheimer’s is a thief that […]

Title

Go to Top