5 04, 2019

Person-Centered Care

A Nurse’s Kindness

I experienced person-centered care a  few years ago my husband had back surgery. When he came out of recovery he had tubes going into and coming out of every part of his body. He was in tremendous pain, and I was very concerned. Wanting to provide a little comfort, I loaded some of his favorite music onto an iPod.

Wally, the night nurse, popped into the room and exclaimed, “Acoustic guitar! That’s awesome!” and then he asked, “Is that Otmar Leibert?” I nodded, and he said, “I love that guy!” He spent a couple of minutes with us. He asked some personal questions about Alex, and he told us a few things about himself, including the fact that he played the […]

28 01, 2018

Caregiver Help Word of the Day: VOWS

Loving Someone Through Sickness & Health

When most of us repeat our wedding vows, especially when we’re young,  it’s easy to imagine and anticipate the “better,”  “the richer,” and the “in health” portion of the ceremony. I have wondered if anyone would actually go through with it if they understood how difficult maintaining a lifelong commitment can be.

 

 

My question was answered last fall when I spoke at a caregiving conference in Santa Barbara, California where I met Jo Bakker, an elegant woman, who was very well acquainted with the “worse” and “sickness” portions of the vows she had taken fifty-seven years earlier. Jo had been caring for Tom, her 83-year-old husband, who had been suffering from the […]

14 09, 2016

Feeling Peaceful

Feeling PeacefulThis morning as I was feeling a bit overwhelmed by all of the projects that I have going on and all I need to get done, I came across this quote from Buddha: “I never see what has to be done. I only see what remains to be done.”

I like this perspective. It occurs to me that as long as we are alive, there will always be something that needs to be done. So maybe we should just take a deep breath, relax our bodies and our minds and accept that there will always be something new that demands our time and attention, especially when we’re caring for someone who can’t care for him/herself. The trick is to feel peaceful about this.

We need […]

15 04, 2015

The Sacrifices of Caregiving

The Sacrifices of Caregiving – A Tricky Journey

caregiver-sacrificesThe sacrifices of caregiving are almost too numerous to list, and maintaining the balance between your family life and your caregiving responsibilities is often a very tricky journey.

I was a single mother with three teenage kids the night I got “The Call” and was told that my dad had suffered a severe stroke. Mom was deeply shaken and she asked me to come home.

My son Eric was a senior in high school, and that Friday night was the final football game of the season. It was “Mom’s Night”. All of the senior boys were going to walk out onto the field and give each of their mother’s a rose. It was […]

16 02, 2015

Ask for Help

Relinquish Control Ask for Help

caregiver asking for helpFor those of us who have become adept at managing our families, homes and careers, it can be incredibly difficult when something shifts and we have to ask for help.

My friends Emma and John are two of the most independent, intelligent, capable people I have ever known. Emma runs a successful business, and she has been taking on more and more of the domestic load in recent years because of John’s advancing Parkinson’s Disease. On Saturday morning she stepped off of a curb and broke a three bones in her foot.

Emma called me yesterday morning in a panic. I stopped on my way to their home and bought some groceries. When I arrived, she was […]

7 02, 2015

Surrendering Control

A View from the Pit

caregiver frustated over lack of controlSurrendering control may be one of the hardest things any of us will ever do. I learned about this many years ago when I attended a women’s Christian retreat in the Rocky Mountains. The theme of the event, “A View from the Pit”, was inspired by the Bible story about Joseph, whose brothers chose to throw him in a deep pit with no hope of escape rather than murder him. You can imagine that Joseph felt confused, scared, and betrayed. His view looking up from the bottom of that pit must have been one of despair and hopelessness.

It was a perfect metaphor for my life at the time. I’d gone through a contentious […]

6 02, 2015

Control Your Attitude

Choose to Refuse

Caregiver chooses to control her attitude by refusing to be controlled by others. As a caregiver, learning how to control your attitude toward the challenges of caring for those who cannot care for themselves takes energy, effort and practice. I was reminded of this when I saw a plaque in our former priest’s office that declared, “I refuse to gratify the devil by becoming discouraged.”

I love the word “refuse”. It’s so powerful! It also makes me think of my 3-year old granddaughter Leah and my 88-year-old Aunt Jean. When Leah doesn’t want to do something, she plops herself down on the floor, crosses her legs and arms, sticks out her lower lip and refuses to budge.

My Aunt Jean knocked my […]

4 02, 2015

Maintaining a Positive Mental Attitude

Put a Filter on Negativity

maintaining a positive attitudeMaintaining a positive mental attitude as a caregiver doesn’t just happen. It takes conscious effort and a willingness to filter out the negativity in your life.

I used to be a news junkie. A few years ago I realized I was getting really angry and upset about things over which I had no control. Watching the late news and hearing about the most recent bombings, murders, rapes, drug busts and child abuse cases was sending me to bed with feelings of sadness and despair. I couldn’t emotionally afford to end my day with a huge dose of negativity, so I turned off the TV.

Last week I had coffee with a friend who brought up (once again) […]

25 01, 2015

Caregiver Recognition

Gratitude for those who are caring for a spouse

A Little Caregiver Recognition and Gratitude Goes a Long Way

There are caregiver recognition weeks and months, and sometimes there are awards given at banquets to a caregiver who has done something amazing, but when you’re in the trenches and caring for someone who has a chronic condition, it can feel like like the hardest, most thankless job you’ve ever done.

I met my friend Ginny for breakfast yesterday, and when I asked, “How’s Mike?” She shrugged and said, “So-so.”

I said, “I’m sorry. I know this is hard for both you and Mike.”

Quite forcefully she said, “Thank you! Thank you for recognizing that it’s hard for me too! Everybody always says, ‘Poor Mike! Poor Mike!’ No […]

24 01, 2015

Caregiver Self-Care

Rest & Respite – The Key to Survival

Respite - Self Care for the CaregiverIt isn’t always easy to focus on caregiver self-care, but if you’re going to be caregiving over an extended period of time, taking regular breaks and arranging for respite care could end up being the key to your survival.

I recently read that more people send negative tweets the Monday after New Years than any other day of the year. The reason may be that the holidays are over and people have gone back to work feeling like they have over-indulged and over-spent.

I tried to imagine what my mother would have thought about that article. I suspect she may have said, “Oh, poor baby. You’re feeling fat and broke. My […]

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